Booklet on EMA pre-submission and assessment processes

EMA has published a booklet describing the journey of medicine for human use authorized through EMA, from initial research to discussions on patient access to medicines across the EU. It can be found here

The booklet describes in particular how EMA supports medicine development by providing scientific advice and how it assesses a medicine’s benefits and risks once it receives an application for marketing authorization. 

All the steps involved in these processes, including the involvement of patients, healthcare professionals, and other external experts, as well as the principles guiding the scientific discussions, are outlined.

Psoriatic arthritis symptom diary

A diary for people with psoriasis to share their symptoms and
how they are feeling with their doctor during regular visits.

PsA symptom checker patient diary_2018

PSORIASIS DICTIONARY FOR PATIENTS

Your guide to help you when speaking to your doctor

FINDING THE RIGHT WORDS

Psoriasis may have already affected aspects of your life but remember that you and your doctor are partners in managing your psoriasis. There is plenty of support available to help you maintain a good quality of life. Perhaps you have felt rushed or left the doctor’s office realising you haven’t discussed something that is important to you. Next time you visit your doctor, share your story and have an honest conversation about how psoriasis affects your daily life.

Finding the right words to describe your symptoms can be difficult; if you can describe your real-life experiences this can help your doctor understand exactly what you are facing, especially when the doctor’s time is limited. This dictionary will prepare you for conversations with your doctor about the care you need to live the life you wish for and deserve.

PSORIASIS DICTIONARY FOR PATIENTS 2018

psoriasis-dictionary

Psoriasis dictionary

Sometimes it seems like doctors speak a different language. They don’t mean to. Medical terms are just complicated. There are lots of abbreviations and long, seemingly unpronounceable words.

So we thought we’d help out.

This guide helps you get to grips with all the terminology you need before your appointment. It can help you to ask your doctor for clear skin and also to discuss all of the options that could help you to achieve this.

Pso-Dictionary_v2

IF YOU HAVE PSORIASIS ASK YOUR DERMATOLOGIST FOR CLEAR SKIN.

IF YOU HAVE PSORIASIS,
ASK YOUR DERMATOLOGIST
FOR CLEAR SKIN.

WHAT YOU DO WITH IT
IS UP TO YOU.

If you have psoriasis, we’ve got good news for you. Thanks to advances in dermatology, clear skin is now possible. So book an appointment with your dermatologist and ask for clear skin. And reclaim what psoriasis has taken away from you. Whatever that is.

Visit askyourderm.com

Celebrating 30 years

FRIDAY 18.10, GALA DINNER and AWARDS

On the occasion of our 30 anniversary, from Europso, we decided to recognise the work of our members for the last years, arranging a gala dinner where some awards were shared with them.
The awards Gala dinner was headed by our Vice – President, David Trigos and Started with an opening speech of our President, Jan Koren. The celebration continued recognising the hard work of single people who made possible this 30 years.

EUROPSO 30 years summary

“Give Me My 3 Seconds” – EUROPSO

The EUROPSO Psoriasis Patient Study

THE EUROPSO PSORIASIS PATIENT STUDY: TREATMENT HISTORY AND SATISFACTION REPORTED BY 17,990 MEMBERS OF EUROPEAN PSORIASIS PATIENT ASSOCIATIONS

Salonen S-H on behalf of the EUROPSO Patient Survey Study Group EUROPSO, Helsinki, Finland

INTRODUCTION

Psoriasis can have a profound impact on a person’s quality of life, particularly if it is extensive, affects a visible or sensitive area, or is difficult to treat. To explore the impact of psoriasis on the quality of life of European patients and to learn about patients’ perceptions of current treatments, EUROPSO (European Federation of Psoriasis Patient Organisations) has conducted a large-scale postal survey of the members of nine European patient associations …

europso_survey_en

OpenLetter Value of Health Cooperation

EU Health Collaboration is crucial for Europe’s future

Dear President Juncker,
We, the undersigned organisations, repre senting EU health stakeholders, wish to express our grave concern about the future of health in European policies and programmes, in the light of your White Paper on the Future of Europe, and propose an urgent meeting with you and your services on this topic.
Our determined view, shared by the vast majority of EU citizens, is that health is absolutely and unequivocally a core business of the EU. Protection of a high level of human health and wellbeing is entrenched in the Treaties of the European Union.
1 EU collaboration in the field of health is indispensable for the future of Europe and rebuilding the trust of citizens in the European Union. We need more health to unlock the full potential of economic and social policies. 70% of Europeans want the EU to do more for health, according to the most recent Eurobarometer survey. With such a strong, unequivocal demand from EU citizens for more action in the field of health, it is essential that this is not only maintained, but actually enhanced. The EU needs to continue de liver results that make a tangible difference in the daily lives of its citizens and thus re-establish people’s trust in its institutions.