The Psoriatic Association of Slovenia: The 1st congress for psoriatic patients was a great success

Author: Nina Pahor

The Psoriatic Association of Slovenia strives to offer the best to its members and patients with psoriasis.

That is why this year we organised the 1st congress for people with psoriasis, attended by more than 120 patients. The congress was held in a beautiful location on Brdo pri Kranju.

We were joined by top specialists, nurses who are with you in this fight against the disease and accompany you on the path of treatment and improvement. We wanted to provide you with quality and verified information about your illness. The congress was opened by the president of the Society of Psoriatics, Mr. Jan Koren, with an introductory address to all present.

Ms. Nevenka Veboten, a graduate nurse from SB Celje, shared her knowledge and experience with us, who presented us with phototherapy from the side of a nurse. It is impossible to fight psoriasis without local therapy. Mrs. Sandra Bedeković, MD, taught us how to properly apply local therapy and the importance of daily care for skin care. a nurse from the Department of Skin and Venereal Diseases, UKC Maribor.

A healthy lifestyle that includes a healthy diet and physical activity is important for all of us, especially for patients with chronic inflammatory disease. Everything about the guidelines for maintaining a healthy and vital life was presented to us by Mr. asist.dr. Aleš Ambrožič, MD, specialist in internal medicine, specialist of rheumatology from the Clinical Department of Rheumatology, UKC Ljubljana. With the years of knowledge of the disease, the method of treatment also advances. The newest treatment for psoriasis is biological drugs. We were lectured on the goals of psoriasis treatment by prof. Tomaž Lunder, MD, specialist in dermatovenerology from the Dermatological Clinic of the UKC Ljubljana.

Some of you know how psoriasis treatment was done 40 years ago, but many are unaware of how psoriasis treatment has progressed. An insight into the history of psoriasis treatment and progress in treatment was presented to us by Nataša Koser Kolar, MD, specialist in dermatovenerology from SB Celje. Since psoriasis also has associated diseases, we have devoted the topic of the next lecture to one of them. Psoriatic arthritis is an associated disease that occurs in almost 30 percent of people with psoriasis. Katja Perdan Pirkmajer, MD, specialist, lectured us on the importance of treatment and early detection of this disease. of rheumatology from the Clinical Department of Rheumatology, UKC Ljubljana.

Last, but no least important, was the lecture on the psychological side of the disease. The very diagnosis and acceptance of the disease can be a big challenge for both the patient and his family. The burden we get with a diagnosis affects our mental health. And this is exactly what we should devote ourselves to much more. The importance of the psychological side of the disease was presented to us by Ms. Sanja Roškar, MSc in Psychology, Specialist in Clinical Psychology from the Clinic for Internal Medicine, UKC Maribor.

During the break between lectures, we also had a very tasty lunch and stretched our legs around the autumn-colored estate on Brdo pri Kranju. The atmosphere at the congress was very pleasant and we believe that the attendants have acquired some new, important information about the disease and its treatment, which will make patients’ life with it easier.

EUROPSERVATORY Project Launch Announced for May 2023

Jan Koren, President of EUROPSO

Psoriasis has many faces and we need more research to know them all

People with psoriasis often spend the day feeling uncomfortable, embarrassed, itchy and in pain. While lesions may be itchy and painful, there are also psychological effects of psoriasis that can be severe. Other diseases and conditions can be associated with psoriasis and psoriatic arthritis, including diabetes, cardiovascular disease and depression. The latest data even shows that one in two persons with psoriasis has depression. Ahead of this year’s World Psoriasis Day, we talk about the importance of continuous research in this area with Jan Koren, President at EUROPSO European Federation of Psoriasis Associations.

Seemingly, there is already some accumulated knowledge about this disease, so why do you insist on further research in psoriasis?
Yes, there is extensive knowledge on some aspects of psoriatic disease. This knowledge came through research and helped finding different therapy options for people suffering from psoriasis and psoriatic disease. While it seems that we have learned a lot about psoriasis, don’t forget that scientists still do not know what exactly causes this disease. Research is an important piece of the mosaic, without it, we can’t possibly see the whole picture. And what we cannot see, we surely cannot understand or successfully tackle. Having so many different therapies today, comparing to some decades ago seems like a big progress, but the research must continue. Let’s just say that we are not in position to lift our foot from the pedal any time soon.

What is EUROPSO doing on this matter?
As an umbrella organisation, we receive country-specific information through our members from 20 European countries. Although informal and sometimes anecdotal, the information we gathered in previous years made us worry if the number of investigative research projects was decreasing. To be sure about what is the real situation, we initiated, together with EUPATI Spain, a project called EUROPSERVATORY. Just before the pandemic, we started working on this long-term project that will eventually show the complete picture of Psoriasis and Psoriatic Arthritis in Europe. The project is divided in three parts. The first part, dedicated to R&D and Clinical trials is now being finalised and we will soon have a Report, showing the summary of the situation in Europe. I feel privileged to announce the launch of this Report for May 2023. We at EUROPSO are hoping to present the EUROPSERVATORY project findings in the EU Parliament next year, within the European psoriasis week in May 2023.
In addition, this project will implement a service which would offer to our members, psoriasis patients, clinical trials as soon they are approved and included in the EU CT register.
At this point, I feel I also need to express our gratitude to our industry partners, companies BMS, Boehringer Ingelheim and Janssen for their generous support so far, during the first phase of our project.

About Psoriasis and psoriatic arthritis
Psoriasis is an immune-mediated disease that causes raised, red, scaly patches to appear on the skin.
It typically affects the outside of the elbows, knees or scalp, though it can appear on any location. Psoriasis affects at least 15 million people in Europe. It is not contagious.

Psoriatic arthritis (PsA) is a chronic, inflammatory disease of the joints and where tendons and ligaments connect to bone. It can start at any age and some persons develop PsA without ever developing or noticing psoriasis.
There are no special blood tests or tools to diagnose psoriasis. A dermatologist or other healthcare professional usually examines the affected skin and determines if it is psoriasis.
When biopsied, psoriasis skin looks thicker and inflamed when compared to skin with eczema.
Family history plays a big role in psoriatic disease, as about one-third of people with psoriasis have a family member with this disease.

European Psoriasis Week 2022

In 2022, the European Psoriasis Week (EPW) is dedicated to raising general awareness of psoriasis, Psoriatic Arthritis (PsA) and Generalized Pustular Psoriasis (GPP), which is both physically and genetically different from Plaque Psoriasis.

Wishing to support our members in spreading the word about our cause, we have created a toolkit with visuals to be used in social media during the #EPW, from 23rd to 29th May. This toolkit was sent to all EUROPSO members, which is currently 21 organisation from 20 European countries.

Given the limitations of the on-going Covid-19 pandemic, we are very appreciative of our members’ work this year and hope to have even bigger EPW movement in the years to come.

World Psoriasis Day – Czech Republic

The Impact of Psoriatic Disease on a Woman’s Career, Family Planning, Social Life and Mental


A recent survey from IFPA, EUROPSO, and UCB interviewed women from 11 European countries living with moderate-to-severe psoriatic disease.

The findings provide meaningful insight into the experience of women living with psoriatic disease. For example:

  • The impact of psoriatic disease on disease outcomes and quality of life are greater for women than men.
  • The early onset of psoriatic disease results in diagnoses and treatments that typically overlap with a female patient‘s reproductive years and the start of their career.
  • Women with psoriatic disease report greater psychological implications associated with their disease, compared with men.

These findings will help improve holistic treatment and family planning for women living with psoriatic disease.

Read the full article here.


EUROPSO presents European Psoriasis Week as an annual week dedicated to people with psoriasis and/or psoriatic arthritis. This is a new campaing where we want to make more visible psoriatic disease.

Aim of European Psoriasis Week

European Psoriasis Week is dedicated to people living with psoriasis or psoriatic arthritis. During the last week of May, we aim to address their needs:

Raise awareness

Psoriasis affects millions of people around Europe – not just physically, but also socially, emotionally and financially. European Psoriasis Week aims to raise the profile of this debilitating disease and increase awareness of the effect it has on people’s lives.

Spread information

For many, psoriasis is still a relatively unknown disease. On European Psoriasis Week, we spread information about psoriasis, dispel common myths and answer questions. We also inform patients about their own condition, so they can feel empowered to speak about it.

Improve access to treatment

On European Psoriasis Week, we lobby to give people with psoriasis better access to appropriate, affordable treatment. That’s why we specifically address key health decision-makers like national governments, policy-makers and healthcare providers that day.

Give the psoriasis community a voice:

Many people living with psoriasis may struggle to get the world to listen to their needs. European Psoriasis Week is an opportunity for the psoriasis community to speak out from a common platform – and have its voice heard.

PsoProtect and PsoProtectMe Update – January 202

Dear PsoProtect supporter,

We are so grateful for your ongoing contributions to the global psoriasis/COVID-19 registries, PsoProtect and PsoProtectMe. We are delighted to share our latest update – attached and copied below, alongside a plain text version. 
PsoProtect – please continue to report any cases of suspected or confirmed COVID-19 in psoriasis
PsoProtectMe– please encourage your patients to complete the PsoProtectMe survey, whether or not they have had COVID-19

PsoProtect and PsoProtectMe Update – November 2020

Dear PsoProtect supporter,

We are so grateful for your ongoing contributions to the global psoriasis/COVID-19 registries, PsoProtect and PsoProtectMe. We are delighted to share our latest update – attached and copied below, alongside a plain text version. 
PsoProtect – please continue to report any cases of suspected or confirmed COVID-19 in psoriasis
PsoProtectMe– please encourage your patients to complete the PsoProtectMe survey, whether or not they have had COVID-19

A Polka dot Day (Puntíkový den)

Let’s put on polka dots clothes and get rid of people’s prejudices. No one with psoriasis or psoriatic arthritis should be left alone with their worries. That’s why we decided to hold a Polka dot Day on the occasion of World Psoriasis Day, which this year falls on Thursday, October 29, 2020. 

We will be very happy if you join us and together we will support psoriasis patients by wearing clothes or accessories with polka dots on this day. This will let our surroundings know that we have known with the basic facts about psoriasis and that we are not indifferent to these people. 

       Yours “Sister in action” Gabriela Doleželová  association Revenium and SPAE

EPIDERMIA – Greece receives an important award for the site PSORIASIMOU.GR

The Greek member of Europso, Panhellenic Society of Patients with Psoriasis and Psoriatic Arthritis, Epidermia, was awarded at the Healthcare Business Awards 2020, Greece, for the website  (translated my psoriasis) created in collaboration with Cactus Digital Growth. The committee awarded the Gold Award to Epidermia in the category “Patient Associations”, Actions aimed at informing / raising awareness / preventiνγ, thus recognizing the important role that plays in informing and raising public awareness about psoriasis and psoriatic arthritis.

The site is a dynamic informative website, in which all patients can access valid and scientifically documented information from experts on issues related to psoriasis and psoriatic arthritis. At one may can find articles by specialized scientists on psoriasis and psoriatic arthritis, educational videos, quizzes and infographics, material from the World Health Organization (WHO), Europso and IFPA, as well as personal stories by patients, who write about their jun. The site addresses to psoriatic patients, their families and friends, as well as the public.

The team of Epidermia is honored for this distinction that recognizes it’s work and effort. Epidermia is committed to continue in this patient-centered direction with the aim of valid information and reduction of stigma.

In the following link, you can see the awards in detail: