Tag Archive for: Jelena Misita

Complete Access to Treatment Across Europe: EUROPSO Calls for Addressing Inequities in Psoriasis Healthcare

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Brussels, May 29, 2024 – EUROPSO, the European Federation of Psoriasis Associations, is calling attention to the pressing issue of healthcare disparities faced by individuals living with psoriasis across Europe. As part of European Psoriasis Week 2024, EUROPSO emphasizes the critical need for equitable access to treatment and care for those affected by this chronic autoimmune disease.

Psoriasis, a long-lasting condition characterized by patches of abnormal skin, not only affects physical well-being but also poses significant risks to overall health and life expectancy. Recent studies have revealed that individuals with moderate to severe psoriasis have a life expectancy that is, on average, five years shorter than those without the condition [1]. The heightened risk of cardiovascular disease among individuals with psoriasis contributes significantly to this disparity [1].

Despite the recognition of psoriasis as a risk factor for various comorbidities, including cardiovascular disease and mental health disorders, there remains a concerning lack of visibility of psoriasis within healthcare policies and decision-making processes. This invisibility translates into disparities in market access decisions for psoriasis therapies across Europe [2].

A comprehensive analysis of market access decisions in several European countries underscores the inconsistencies and discrepancies in the assessment of psoriasis treatments. Variations in criteria such as appropriate comparator therapy, patient population, and economic data lead to unequal access to therapies, leaving many individuals with limited options for managing their condition [3].

EUROPSO President Jan Koren emphasizes, “Psoriasis should not be invisible to policymakers and healthcare stakeholders. It is imperative that we address the disparities in access to treatment and care for individuals living with psoriasis across Europe. As we strive towards the goals outlined in the EU Healthier Together Initiative, including the reduction of premature mortality from non-communicable diseases and the promotion of mental health and well-being, we must ensure that the needs of psoriasis patients are not overlooked.”

The EU Healthier Together Initiative, launched by the European Commission, aims to support member states in addressing major non-communicable diseases (NCDs) and reducing health inequalities [4]. While the initiative covers various aspects of healthcare, including cardiovascular diseases, diabetes, chronic respiratory diseases, and mental health, EUROPSO emphasizes the importance of incorporating psoriasis into this holistic approach to NCD prevention and care.

EUROPSO calls for collaborative efforts among policymakers, healthcare professionals, and patient advocacy groups to prioritize the needs of individuals living with psoriasis. By promoting equitable access to treatment, raising awareness of comorbidities associated with psoriasis, and advocating for policies that support comprehensive disease management, EUROPSO aims to improve the quality of life for psoriasis patients across Europe.

Media Contact: TBC

References:

  1. MyPsoriasisTeam. (n.d.). Does Psoriasis Affect Life Expectancy? Retrieved from https://www.mypsoriasisteam.com/resources/does-psoriasis-affect-life-expectancy#:~:text=Psoriasis%20is%20not%20a%20fatal,shorter%20than%20people%20without%20psoriasis.
  2. Value in Health. (2017). Disparities in Market Access Decision Making About Available Therapies for Psoriasis Across Europe. Retrieved from https://www.valueinhealthjournal.com/article/S1098-3015(17)30403-5/fulltext
  3. National Center for Biotechnology Information. (n.d.). Psoriasis: A Disease with Plenty of Comorbidities: Introduction. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9196664/
  4. European Commission. (n.d.). EU Non-Communicable Diseases Initiative. Retrieved from https://health.ec.europa.eu/non-communicable-diseases/healthier-together-eu-non-communicable-diseases-initiative_en

About EUROPSO: EUROPSO is the European Federation of Psoriasis Associations, representing the interests of people living with psoriasis and psoriatic arthritis across Europe. EUROPSO works to raise awareness of psoriasis, advocate for improved access to treatment and care, and support research initiatives aimed at advancing the understanding and management of psoriatic diseases.

Complete Access to Treatment Across Europe: EUROPSO Urges Action on Psoriasis Healthcare Disparities

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Brussels, May 27, 2024 – As European Psoriasis Week starts today, EUROPSO, the European Federation of Psoriasis Associations, is calling attention to the urgent need for complete access to treatment for individuals living with psoriasis across Europe. Despite the many advancements made in healthcare and the substantial number of therapeutic options available for people living with psoriasis, treatment remains out of reach for many due to systemic barriers.

The EU Healthier Together Initiative, while commendable in its efforts to address major non-communicable diseases, unfortunately overlooked the significant impact of psoriasis on six million Europeans currently living with this condition. This oversight reinforce the necessity for a collective effort to address the gaps in access to treatment for psoriasis patients.

Jan Koren, President of EUROPSO, emphasizes the importance of rectifying these disparities, stating, “Psoriasis affects millions of individuals across Europe, yet access to treatment remains uneven. It is imperative that we bridge these gaps to ensure that every person living with psoriasis has the opportunity to receive the care they deserve, in the country where they live.”

One of the primary challenges in achieving complete access to psoriasis treatment is the shortage of healthcare workers with expertise in dermatological or rheumatological conditions. Additionally, socioeconomic disparities between and within European countries further aggravate the issue, leaving many without access to vital medications and therapies.

Despite these challenges, EUROPSO remains dedicated to advocating for the rights of psoriasis patients. Through initiatives like European Psoriasis Week, the organization aims to raise awareness and mobilize support for policy changes that will improve access to treatment and care for all individuals affected by psoriasis.

This European Psoriasis Week, join EUROPSO in amplifying the message of “Complete Access to Treatment Across Europe. Let’s talk about psoriasis in Europe.” Support our cause by actively participating in EUROPSO’s IEPW24 campaign by sharing educational material, infographics, and videos. Your involvement will directly contribute to giving voice to psoriatic patients and the visibility they need in order to make a positive change. Together, we can work towards a future where every person living with psoriasis has equal access to the care they need and deserve.

For media inquiries or further information, please contact:

Jelena Misita

Patient Advocacy Consultant

Email: jelena.misita@euro-pso.org

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Hashtags

#complete_access_4_all

#let’s_talk_about_access

#let’s_talk_about_pso

#let’s_talk_about_treatment

About EUROPSO

EUROPSO is the European Federation of Psoriasis Associations, dedicated to improving the quality of life for individuals affected by psoriasis and psoriatic arthritis. Through advocacy, awareness campaigns, and support services, EUROPSO works to address the needs of psoriasis patients and promote equitable access to treatment and care across Europe.

The EUROPSO podcast series focused on the Epicensus programme

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At the beginning of this year, EUROPSO produced four podcast episodes shedding light on different calls to action from the Epicensus programme, from three perspectives: patients, patient advocates, and medical professionals.

All four episodes are now available for streaming on Spotify and EUROPSO’s YouTube channel.

Despite many improvements in treating and managing psoriasis patients, significant needs still remain unmet. The Epicensus programme brought together three important groups of people: dermatologists, payors, and patient representatives, such as EUROPSO, with a focus on improving the standard of care.

The Epicensus programme achieved consensus across different psoriasis stakeholder groups on the essential changes needed to elevate the standards of care for psoriasis patients across Europe. Collective action is now needed to implement these changes. EUROPSO was proudly represented in this project by Jan Koren, our president.

We partnered with UCB Pharma to challenge the status quo in psoriasis care through the European-wide ‘Epicensus’ programme.

The production of these episodes was financially supported by UCB Biopharma.

To access individual podcast episodes, please click on their title below:

Episode 1: More than skin deep

Episode 2: Education for all

Episode 3: All in this together

Episode 4: Access all areas

European Psoriasis Week 2024: Request for Complete Access to Treatment Across Europe

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The European Psoriasis Week, scheduled for the last week of May, starting from May 27, is getting ready to inspire conversations and drive action towards ensuring complete access to treatment for individuals living with psoriasis across Europe. With a targeted focus on people aged 25-45, this year’s campaign aims to leverage the power of social media platforms like Instagram and TikTok to raise awareness and advocate for improved access to psoriasis treatment.

Based on available data provided by IFPA, there are estimated 6 million people in Europe living with psoriasis. Psoriasis, a chronic autoimmune condition that affects millions worldwide, poses significant challenges for those living with it. From the physical discomfort of skin lesions to the psychological toll of stigma and discrimination, the impact of psoriasis can be profound. However, access to effective treatment can make a world of difference, offering relief and improving quality of life for those affected.

The European Psoriasis Week 2024 campaign carries a simple yet powerful message: “Complete Access to Treatment Across Europe. Let’s talk about psoriasis in Europe.” Through engaging content and thought-provoking discussions, the campaign seeks to highlight the importance of ensuring that all individuals have access to the treatment and support they need to manage their condition effectively.

“We believe that every person living with psoriasis in Europe deserves access to comprehensive treatment options,” said Jan Koren, EUROPSO President. “By coming together during European Psoriasis Week, we can amplify our voices and drive meaningful change towards a future with healthier skin and a better quality of life.”

To join the conversation and show your support for complete access to psoriasis treatment across Europe, use the following hashtags on social media: #complete_access_4_all #let’s_talk_about_access #let’s_talk_about_pso #let’s_talk_about_treatment

For more information about psoriasis and the importance of access to treatment, visit Euro-Pso.

Media Contacts

Jelena Misita, Patient Advocacy Consultant at EUROPSO Email: jelena.misita@euro-pso.orgManel Casielles, Communication Officer Email: secretariat@euro-pso.org  

About European Psoriasis Week

European Psoriasis Week is an annual campaign dedicated to raising awareness about psoriasis and advocating for improved access to treatment and support for individuals living with the condition across Europe. By fostering dialogue and collaboration among stakeholders, European Psoriasis Week aims to drive positive change and enhance the quality of life for those affected by psoriasis.

Unveiling Psoriasis: A Double Perspective

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EUROPSO Podcast Episode 2

With a blend of personal narratives and professional insights, second episode of Europso Podcast offers a comprehensive exploration of psoriasis from a female perspective, shedding light on the challenges, triumphs, and collaborative efforts in managing this chronic condition.

In this episode supported by Almirall, Europso continues to explore deep into the world of psoriasis from two unique perspectives. Hosted by patient advocate Jelena Misita, guests Tina Koukopoulou, a psoriasis patient, and Dr Martina Burlando, a healthcare professional, share their insights into the challenges and triumphs faced by women with psoriasis.

Tina, a patient advocate from Greece, shares her journey with psoriasis since adolescence, while Dr Burlando, a specialist from Italy, sheds light on her expertise in managing chronic skin conditions.

Tina discusses the evolving impact of psoriasis on her life, from initial diagnosis to managing symptoms and societal stigma. She shares personal experiences of familial support, coping strategies, and the complexities of living with visible skin lesions, particularly as a woman in a society where image matters.

Dr Burlando emphasizes the holistic approach to psoriasis management, considering both physical and emotional well-being. She highlights the importance of patient-provider collaboration, tailored treatment plans, and addressing concerns around family planning and therapy side effects.

The discussion underscores the significance of open communication between patients and healthcare professionals in navigating treatment decisions, managing fears, and optimizing outcomes. Dr Burlando stresses the role of empathy, personalized care, and ongoing support in empowering patients on their psoriasis journey.

The episode concludes with a reminder that while living with psoriasis presents unique challenges, with support, understanding, and proper guidance, it’s a journey that can be managed. Good communication fosters strong patient-provider relationships, paving the way for better treatment outcomes and improved quality of life.

Listeners are encouraged to subscribe to the Europso YouTube channel for more enlightening discussions on managing skin conditions. With Almirall’s support, the podcast aims to provide innovative solutions and improve the lives of those affected by psoriasis.

For listening this episode, please follow this link.

EUROPSO just launched its first podcast episode

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Beyond the surface: Assessing the wellbeing of psoriatic patients

We’re excited to introduce our EUROPSO debut podcast episode titled “Beyond the Surface: Assessing the Wellbeing of Psoriatic Patients.” Dive into a 32-minute journey, supported by Almirall Pharma, as we explore the lives of individuals affected by psoriasis. Join host Jelena Misita and special guests for an insightful conversation.

In this newly released episode, we explore the core concerns of psoriatic patients and how their wellbeing is assessed. Our esteemed guests, Dr Alvaro Gonzalez Cantero, a dermatologist, and Antonio Manfredi, a patient and journalist, shed light on the true meaning of patient wellbeing for those living with psoriasis.

Tune in now to discover why Antonio emphasizes the importance of self-care and why Dr. Alvaro is hopeful about the available treatment options for psoriasis.

Listen to this episode on Spotify, Google Podcasts, and the App Store for easy access. Click here to start listening.