Tag Archive for: David Trigos

EUROPSO Members Meeting Highlights – November 2024, Frankfurt

The EUROPSO Members Meeting, held on November 16, 2024, in Frankfurt, Germany, brought together patients and patient advocates from the psoriasis community to reflect on 2024’s achievements and strategize for the future.

Key Topics Discussed

1. Reflections and Plans by Jan Koren
EUROPSO President Jan Koren opened the meeting with a comprehensive overview of the organization’s activities in 2024 and outlined plans for 2025, emphasizing the importance of continued collaboration and innovation within the psoriasis community.

2. Health Technology Assessment (HTA) Updates
David Trigos, EUROPSO Vice President, discussed the new EU Health Technology Assessment regulation and its impact on the psoriasis community. Trigos also announced EUROPSO’s new membership in the HTA Stakeholder Network, a significant milestone for the organization. His presentation focused on:

  • Encouraging patient and representative involvement in joint clinical assessments and scientific consultations.
  • Strengthening the role of patients and stakeholders to enhance HTA transparency and quality.
  • Implementing standardized EU-wide methods for HTA processes.

3. Advocacy Campaigns in 2024 and 2025
Tina Koukopoulou reviewed the success of the European Psoriasis Week (EPW) and World Psoriasis Day (WPD) campaigns in May and October 2024. The meeting included a brainstorming session for 2025 campaigns, focusing on equity in treatment access, information, and digital tools.

4. GPP Wellness Project Update
Jelena Misita provided insights into the IFPA-funded project aimed at improving wellness for individuals with Generalized Pustular Psoriasis (GPP). Progress was shared on its three pillars: healthy diet, stress management, and physical exercise.

5. Effective Use of Data for Advocacy
Luisa Avendano, CEO of EFCCA, emphasized the importance of leveraging data for impactful advocacy, while Roberto Saldaña, Strategy Advisor, highlighted how Real-World Evidence can bridge gaps in innovation, stating that, for now, “Innovation does not reach the market… but we don’t even know what we’re missing.”

The meeting ended with a group photo, marking another successful gathering of EUROPSO members. Presentations from the meeting will be distributed to participants by the EUROPSO Secretariat in the coming days.

The event underscored EUROPSO’s commitment to advancing patient advocacy, promoting wellness, and enhancing access to treatment for the psoriasis community across Europe.

The EUROPSO podcast series focused on the Epicensus programme

At the beginning of this year, EUROPSO produced four podcast episodes shedding light on different calls to action from the Epicensus programme, from three perspectives: patients, patient advocates, and medical professionals.

All four episodes are now available for streaming on Spotify and EUROPSO’s YouTube channel.

Despite many improvements in treating and managing psoriasis patients, significant needs still remain unmet. The Epicensus programme brought together three important groups of people: dermatologists, payors, and patient representatives, such as EUROPSO, with a focus on improving the standard of care.

The Epicensus programme achieved consensus across different psoriasis stakeholder groups on the essential changes needed to elevate the standards of care for psoriasis patients across Europe. Collective action is now needed to implement these changes. EUROPSO was proudly represented in this project by Jan Koren, our president.

We partnered with UCB Pharma to challenge the status quo in psoriasis care through the European-wide ‘Epicensus’ programme.

The production of these episodes was financially supported by UCB Biopharma.

To access individual podcast episodes, please click on their title below:

Episode 1: More than skin deep

Episode 2: Education for all

Episode 3: All in this together

Episode 4: Access all areas