This year’s first EUROPSO GPP Workshop, called “Connecting Psoriasis Clinical Centres of Excellence (CoE) with Patient Organisations (POs) for the Benefit of GPP Patients” will be held virtually, using Zoom platform, on April 26, 2023 at 11am CEST. The official language of the workshop is English and, in addition, we have made available simultaneous interpretation to German and Spanish.
This workshop comes as a sequel, after last year’s first event, held in Amsterdam, under the same topic. Briefly summarised, the main outcomes and outputs from last year were fairly practical. The conclusion was that, if you want to create a community where all people living with GPP are connected to their patient organisation, this should be done in three steps:
- Audit POs and CoEs in country/region;
- Raise awareness with CoE(s) about the support available from POs for people living with GPP;
- Provide POs with GPP patient resources and support tools/services
The main goal of the new workshop would be to achieve multi-stakeholder consensus to realise a psoriasis clinical centre of excellence (CoE) – patient organisation (PO) connection pilot project.
At the workshop, we will be hearing about patient’s perspective and Spanish POs’ success story. We will also hear from the medical professional about the importance of CoE/PO connections
from a medical point of view and what would CoEs need to feel confident
to refer people to patient organisations.
So far, we have members who applied to participate from the Netherlands, Slovenia, Spain, Germany, France, Portugal, Greece and Denmark.
If you are a EUROPSO member organisation and you wish to participate, please send an email to email@example.com. Please be advised that this event is organised for a limited number of invitees, on a first come first served basis.
In case you are not our member but you want to know the outcome of this workshop, stay tuned, as we plan to issue a report in the upcoming weeks.
EUROPSO is thankful to our sponsor, company Boehringer Ingelheim for their generous support that enabled us to organise this workshop.